Danny came across this guy on YouTube the other day, who was doing interviews with some children about his condition. At first, we thought he had Duchenne, but then realised he actually has CMT (a similar condition within the Muscular Dystrophy group).
I found his Facebook page and dropped him a message to say how inspirational his positivity is, and we hope Hugo can grow up to have a similar attitude towards his condition. He replied via video!! Such a kind thing to do, and his positivity is simply amazing!
His words have given me a much needed boost and it’s so refreshing to see a positive side to all of this! Definitely one to save to show Hugo when he’s older!